A story about Mia-A Butterfly Child
500,000 people in the world have Epidermolysis Bullosa (EB) and are described as Butterfly Children.
For people with EB, their skin is as fragile as a butterfly’s wings and they can easily get hurt. There is no cure but researchers are getting closer to finding one.
Mia, a Butterfly Child, was born with EB as well as her mother and grandfather.
This book tells the story of who Mia is and the hope to raise awareness about Butterfly Children.