Mia’s Story: A Butterfly Child
Children Are Born to Thrive
This is Mia’s Story

This is the story of Mia, a butterfly child with Epidermolysis Bullosa, or EB for short. EB is a genetic skin condition that leads to blistering of the skin from everyday contact. EB affects over 500,000 people worldwide. Mia’s mother has EB and it also affected her late grandfather.

Mia Thrives was founded by Mia’s parents to increase awareness about EB and to raise funds for families living with this condition.

“Mia’s Story: A Butterfly Child”

A Children’s Book | Coming November 2017
Join the Book Waitlist

About the Book

Amelia 05You hear it all the time. When a family is expecting a baby, friends and family wish them a happy, healthy child. So how can a family manage if their child is born with a health condition? The Vassallo Idiens family were faced with this very question. And as they are known to do, they chose to thrive alongside their new healthcare challenge.

Join baby Mia in her very own children’s book, as she brings us into the world of her hereditary skin condition, Epidermolysis Bullosa (E.B.). Penned by her mother and maternal grandmother, and illustrated by her uncle, Mia takes children and families alike through the day to day life of a toddler, and shares the moments that make living with her health condition a lesson for all.

Mia’s is a story of empowerment, of celebrating what’s different about us, and yet, what is the same. It’s a short story about treating each child with the dignity and compassion that they deserve. It will uplift you, it will inspire you, and you’ll find new ways to think about surviving and thriving in your own life.

Order Mia’s Story

In honour of our daughter Amelia (Mia) Idiens and in celebrating her 3rd birthday, my husband Daryl and I are excited to share our first book to help support the EB community.

We were inspired to create this children’s book The Story of Mia: A Butterfly Child in hopes of bridging a gap by sharing Amelia’s day to day life experiences. The printed book allows us to bring Mia and her day-to-day challenges with EB into several other communities.

More About EB

The EB community consists of family and friends affected by the skin blistering disease Epidermolysis Bullosa. Because of the challenging name of the skin disease, the Epidermolysis Bullosa community uses the simple acronym EB instead.

Children with EB are known as Butterfly Children. There are several different forms of EB and there is a vast spectrum of severity on the scale of EB. Some of the most severe forms are so debilitating that the skin itself can be as fragile and delicate as the wings of a butterfly. By comparison, Amelia has a mild form of EB.

 

mia-book-mockup-small-2Support This Cause with Our Book

By purchasing a copy of the book and donating any amount of your choosing, you are changing the lives of EB families across Canada.
All proceeds from the book sale and donations are going to the EB community, EB families and The Hospital for Sick Children (Sick Kids).

To support Mia Thrives please donate below:

About the Author

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Healthcare Advocate, Public Speaker & Philanthropist, Melissa Vassallo has dedicated her life to making her community accessible through education, legislation, and community service. She is best known for empowering others to live life #ThrivingNotSurviving.

Melissa became a person with a disability after being a passenger in a tragic car accident in 2002. As she suffered catastrophic impairments she was hospitalized for over twenty-five months in seven hospitals in the United States and Canada, endured numerous surgeries, over one hundred procedures, and spent several more years in intensive rehabilitation.

At birth, both Melissa and her one-year-old daughter Mia inherited a rare hereditary skin condition called Epidermolysis Bullosa (E.B.). In addition to supporting important EB work at places like The Hospital for Sick Children (Sick Kids), Melissa decided to publish her first children’s book to spread awareness around this cause and misunderstood condition.

Today, she lives in Port Carling with her husband, their daughter Mia, and their Great Dane. She has a B.A. Hons. in English Literature, a certificate in Business Management Skills and a Master’s from York University in Critical Disability Studies.

If you would like to know more about Mia Thrives or get involved we would love to hear from you!

Email us at hello@miathrives.ca