Pre-Order Mia’s Story
We were inspired to create this children’s book The Story of Mia: A Butterfly Child in hopes of bridging a gap by sharing Amelia’s day to day life experiences. The printed book allows us to bring Mia and her day-to-day challenges with EB into several other communities.
More About EB
The EB community consists of family and friends affected by the skin blistering disease Epidermolysis Bullosa. Because of the challenging name of the skin disease, the Epidermolysis Bullosa community uses the simple acronym EB instead.
Children with EB are known as Butterfly Children. There are several different forms of EB and there is a vast spectrum of severity on the scale of EB. Some of the most severe forms are so debilitating that the skin itself can be as fragile and delicate as the wings of a butterfly. By comparison, Amelia has a mild form of EB.
Support This Cause with Our Book
By purchasing a copy of the book and donating any amount of your choosing, you are changing the lives of EB families across Canada. All proceeds from the book sale and donations are being given to DEBRA Canada, a voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by EB.